Scatter my ashes here...

Scatter my ashes here...
scatter my ashes in the desert...
Showing posts with label healthcare. Show all posts
Showing posts with label healthcare. Show all posts

Wednesday, April 24, 2019

Tools for Nurses vs. Nurses as Tools

It's that time of year, we're approaching Nurses' Week, drawing the ire of millions of nurses across the U.S. May 6-12, to be exact. It's the week where we are reminded of the hand we're dealt, the King of Diamonds versus the Queen of Spades- the analogy is the rich mostly male executives wielding their power, watching over a mostly female workforce being forced into digging their own graves.

In 2015 on the TV show The View, the hosts mocked the Miss America contestant who was a nurse, asking why she had a "doctor's stethoscope". Apparently unaware that nurses are the ones who do physical assessments and actually use those tools more often than doctors, it came across as crass and uninformed to the large number of nurses who saw and heard the remarks. The good thing that came out of it was a flood of activism which resulted in formation of the group now known as Nurses Take DC, to fight for safe staffing and safe patient limits in the workplace.

Playing Cards

Skip ahead four years, and another uninformed comment from a prominent person got the whole nursing world riled up again. Washington State Senator Maureen Walsh made a comment about nurses playing cards most of the day, again inflaming nurses' collective frustration with the ignorance and disrespect with which nurses are treated, especially in the workplace by those decision makers around staffing. Chronic understaffing, overwork, burnout, moral injury, and unsafe conditions for adequate patient care plague the healthcare industry in its sociopathic pursuit of profit.

This time, in response to Senator Walsh's comment, and her weak, non-apology that is now becoming a whine-fest-she's complaining about all the mean comments she's received, nurses have mobilized again.

To Senator Walsh, sorry ma'am, but if you go into politics, you're a public figure and you're going to get public scrutiny. Next time watch what you say and if you screw up, offer a real heartfelt apology and start making amends.

I don't condone people being rude or disgusting. They should be harsh AND tactful at the same time- it IS possible.

First nurses depleted the supply of playing cards in Amazon's warehouse by sending her thousands of decks of cards in the mail. Then there was a petition circulating that gathered some half a million signatures.

Hung by our Stethoscopes

So my question is, if over half a million nurses can unite over a stupid comment by a politician, why can't they unite over the stupid actions of healthcare leadership, including organizations such as the archaic and hypocritical American Nurses Association, which claims to represent us but instead acts in the interest of hospital and healthcare executives in the healthcare corporatocracy? Here's the example in Senator Walsh's own state... supporting the pathetic "staffing committee" proposal to undermine and subvert the aims of safe nurse staffing.

Sure, there's plenty of money for the industry executives to lobby for their own interests but somehow they can't afford to staff safely for patient care? Where are the half million nurses when it comes to these types of decisions? Half a million nurses signed the petition to get Senator Walsh to follow a nurse for an entire 12 hour shift. Half a million nurses should be signing this petition for National Legislation.

Nurses are afraid to speak up in their communities and workplaces because they have no power and can easily be harassed or threatened, and they don't want to lose their jobs, licenses, and livelihoods. The tactics used by management are ugly. In the vast stretches of our anti-union, anti-labor plutocratic country, we have diminished workers' control over their working conditions and job security. And we are seeing more deterioration in the workplace, in the form of violent attacks against nurses.

Furthermore, with the consolidation of hospitals and healthcare facilities under bigger corporate umbrellas, near monopolies have been established, making it harder for nurses to find alternative companies to work for if they don't want to or can't relocate.

Stop the Bleeding

We need a giant set of hemostats to stop the hemorrhaging of nurses and their working conditions before healthcare implodes and completely collapses, resulting in more medical errors, more deaths, and more violence.

Executives use their excuses where they can to manipulate the workforce- using data like HCAHPS (patient satisfaction) scores as a cudgel to terrorize employees around their job security. They never count the human cost of abusive manipulation of employees and their families. These big corporate entities feel no responsibility toward the communities where they exist and employ people who live there, trying to make a living, and being worked harder with fewer staff and deteriorating compensation. It's a sociopathic system and there is no empathy- it takes a true sociopath to buy into the corporate data-pushing bullshit.

Here's are some small examples, and I mean small because they don't directly impact patients- wage theft by employers when nurses they have more work to do than they can finish in a 12 hour shift- by forcing them to clock out after 12 hours and work without pay. Also, when nurses don't get a break they are not allowed to charge for working straight through- they lose pay. And if they try to recoup those wages, nurses are subject to disciplinary action.

Healthcare is a human service, it cannot be run like a factory. Our lack of a human-oriented healthcare system is costing us more and delivering worse outcomes than other industrialized countries and it's not getting any better. Pissed off patients and families who come to expect "customer service" as if they were in a hotel or restaurant will act out aggressively when they are tired of waiting for overworked, rushed healthcare professionals without adequate support staff.

We can let it fall apart and pay an even higher price in the form of more morbidity, mortality, and trauma, or we can use that same fervor we unleashed against a politician's dumbass comment to unify ourselves, watch each others' backs, and take back our control and power over the situation. There are more of us than there are of them. But we need to be unified. We need to join together and speak in one loud strong voice.

I challenge every nurse to take a first step by joining a grassroots organization in taking back healthcare for everyone- especially for the good of the patients we are supposed to be caring for. (bonus: you don't have to pay dues) Don't be fooled by organizations that claim to represent you then backhand you when you're not looking. Sign the National Nurse Patient Ratios Petition.

I promise you, signing a petition like this and joining a group like Nurses Take DC will give you more satisfaction than your job has given you in years! Take back your power over your future in healthcare. Lives depend on it.

Sunday, February 17, 2019

"Square Peg, meet Round Hole"

This post is about my philosophy of running*, but it is also my own personal philosophy on life, because running is such a major part of my life and who I am. I wrote a blogpost a little over 10 years ago here which described my philosophy of running at that point, in 2008, when I was 44, and just starting multiday running.

You'll have to read the whole post below in order to grasp my philosophy, because I don't really sum it up until the end. The in-between and getting there is sort of like an ultra.

My philosophical outlook hasn’t changed dramatically, but it has expanded as a result of a rich array of running and life experiences I have had since then, and I have moved into a different phase of my running life, career, obsession, or whatever you want to call it.

If you want a glimpse into what makes me run- my brain, my thought process, how I navigate the world, and how I see it, read on. This post has turned out to be a short book, don’t feel you have to read it in one sitting. Disclaimer: I’m sure you’ll be offended at some point. If you are, call the WAAAH-MBULANCE. I’m off duty.

What keeps me going forward?

Running and sport is a microcosm of the world we live in, with all its imperfections and exhilaration, joy and pain, nice people and assholes. It’s as much a part of my life as sleeping, eating, and breathing.

Running gives me a chance to do two opposing things- 1. to clear my mind and lose my concerns and worries, and 2. solve problems, think clearly, create, and examine things from different angles.

Running doesn’t change who I am, but it fits perfectly with my personality and what drives me. It contributes to creativity of expression through writing and in painting, though the painting has fallen off the cliff over the past decade.

First, a brief look back at highlights


As of January 2019, I have been a runner for 35 years, 28 of which I have been an ultrarunner.

I have accomplished a few good performances in my lifetime. I’m not superfast, but I’ve had some performances that I worked very hard for and I am happy about them and proud of my efforts and results. I am probably past the days where I’ll win races or set PRs again, but that is not why I run, so I find new ways to challenge myself and find satisfaction in my running.

My most memorable races include some where I performed well, and others where the conditions or presence of other people made the experience. I’ll list them here and why:

1992 Set Colorado State record for road 100Km at the Colorado Springs 100K. It was a USATF certified course, too, a packed dirt urban trail. I ran 9:37:25, and I don’t know if that’s ever been surpassed- it might still be a record. And it wasn’t a fluke…had consistency as in 1994 I ran within 6 minutes of that time on the same course, 9:43:04.

2007-2008 Across the Years 48 hour run first getting to know my friend Lisa Stranc Bliss. She's someone I love and admire, and I value her wisdom and kindness.

Badwater 2008- a fun experience where I learned to seriously run through foot pain and emerge from the puke free zone and finish the race.

2010 Keys 100- I love the ocean and turquoise water, and this was 100 miles of it. So pretty you don’t even notice you’re on the road, except for when you step on retread chunks during the night and think you stepped on a gator. My friend Mike Melton crewed me and my friend Bob Becker was race director. One of my most fun, memorable runs. And I met my friend Beth McCurdy there for the first time. I love her.

2010 Lean Horse 100- That was the most beautiful night ever, the stars were bright under the long shadows of ponderosa pine, and I ran for a long time with Fuzz McPherson and we had a great conversation, and my friends Doug and Marji Nash did a fantastic job of crewing for me. I can remember listening to music, feeling like dancing under the night sky and it was a truly magical experience.

2011 Lake Okeechobee 118- I actually DNFed at 114 miles because it was taking me so long- I had diarrhea from something I ate, my electrolytes were way off and I couldn’t move without cramping. Plus I had to catch my flight the next morning and we might not have made it back to Ft. Lauderdale in time at the rate I was moving. Plus I would have been gator bait. Bob Becker and Phil Rosenstein crewed me, and Mike Melton was race director. Thanks to Bob, I learned about Preparation H wipes- no runner should race without them- and how to recognize gator eyes on the water in the middle of the night.

Badwater Road Double 2011- the crew made it. My crew was amazing. That was so fun. Every. Single. Step. Again, phenomenal nighttime running and blow-your-mind vistas during the day.

2012 Mickelson Trail 1.5 not a race- it was a 5 day adventure run with my friend Ed Green. We ended being self-supported at the last minute and toughed it out and finding burgers and beer along the way helped immensely.

2013 Spring North Coast 24 hour-the weather was horrendous- snow blowing sideways, the cold wind coming off Lake Erie, freezing one side of your face and then the other, the course being overrun with sand, and then missing 100 miles by one mile but still winning. There’s nothing quite like running 99 miles in 24 hours.

2014 Fall North Coast 24 hour nationals- the weather was horrendous but hiding out from the storm in the portapotties with Andy Lovy in the middle of the night and laughing about it. And having such horrible blisters that I only made 80 miles. I hung out with Beth McCurdy, we shared a hotel room, and we both dropped in the middle of the night because we were trashed.

Cornbelt 24 hour 2014- Running a 24 hour PR of 112.3 miles at age 50. I was very happy about it- I trained hard.

There are many, many more fun experiences I’ve had and with many people in my running circles. But those are the ones that stand out. Pretty much every Across the Years run has been over the top enjoyable and fun, and the people made it that way. I’d have to say that is my favorite of all.

Badwater was also a big part of my life for many years, and the runners and staff had a huge influence on my experiences there, I met many great human beings there, and a few unsavory ones! The years of crewing and pacing and working on the medical team were equally fun and great learning experiences.

I might be missing a few, which will come to me, I’m sure, after I finish this post.

But running is so much bigger than a few experiences or fast performances. Those are not what make you, it is the whole, the total of the experience, which for me is about the outdoors, the environment, the challenge, the people, the learning, the growth, and the healing.

Round Peg, meet Square Hole

My basic philosophy of life is that everyday is an adventure. I was originally born and raised in an environment of mostly Eastern European and Russian Jewish descendants and on the mid-Atlantic east coast of the United States. Which means I naturally tend to point out things in a deprecating way that is intended to be humorous. A lot of people don’t get that type of humor unless they grew up in the northeast U.S. or have spent a lot of time around people who are from there.

So, if you’re not from those parts, don’t think I’m a grumbling negative person, because if I was, I would never have survived as an ultrarunner, or done the things I have done in my life. People from New York, New Jersey, and Philadelphia get it. I point shit out in a critical voice, but I’m also seeing the positives and humor in that shit!

People are awesome, but they suck, too. We’re all in this crazy world together and we haven’t done a very good job of supporting each other to navigate this life with less difficulty. We really do make it harder on each other than it needs to be.

Over the years I’ve been called irreverent, immature, insane, idealistic, impossible. Perhaps some of that is all true. Meanwhile I have learned, through the school of hard knocks, not to associate myself with those with bad intentions, those who are mean or self-hating, and people who have ineffectual responses to the world because of their own shortcomings (lack of empathy, lack of self-examination, being in denial, unwillingness to laugh at themselves, or irrational fear of losing something they think they are entitled to) which manifest in stealth or overt attacks on others.

I can fit in some places, but I never fit quite right, and I have no desire to expand into those tightly fitting corners that would restrict my movement. I can never fill all the expectations and I sure as hell don’t want to! There’s always room to move around. I like it that way. I declare myself a round peg in a square hole. I can get out when I need to. It’s better than the other way around-the proverbial square peg getting stuck in a round hole.

In pretty much every aspect of my life, I've never fit squarely in a category, even though I may appear to be, on the surface. Being different, that alone makes you question shit, makes you smarter, and thinking about your survival. And it can be dangerous for the person who is different, physically, mentally, emotionally, and in other ways too- mostly because you appear to be dangerous- a lot of very insecure people get very scared when you start challenging their assumptions.

I refuse to be a drone, or a Stepford person, or a deferential, acquiescent, watered down version of myself just to minimize strife and keep other people happy and undisturbed in their comfortable place, which often serves them poorly as they enable the predators in this world who rely on their deference. It is in the interest of those who want to maintain their power, privilege, status, and wealth to oppress everyone else so they don’t take away even a tiny piece of that power, privilege, status and wealth.

I don’t put up with people who suck the energy and life out of me. I don’t put up with toxic people. I have cut them out of my life. When I encounter them, I no longer pursue interactions or relationships. It’s not worth the suffering. It’s not my responsibility- I am not a charity organization for people with poor social skills. I refuse to coddle or enable.

I derive motivation from the things that piss me off, the things that drive me to persist, be different than the mainstream, and stick to my ways even when occasionally they are so at odds with the way the world works, that they can be painful.

That’s me. Want to know what drives me in running? Fasten your seatbelts and helmets for the long ride, and bring a snack.

What drives me to run?

I love moving forward on my feet. There is something rhythmical, musical, and magical that appeals to my brain and the neurotransmitters that are involved in pleasure. It might be the same phenomenon that results in a dog hanging its head out the window, enjoying the feeling of the air blowing by?

I used to be competitive at times, but not all the time. When I decided to be serious about training, I would put the effort in, but not for every event. I enjoyed running races for fun as much as the ones where I wanted to compete. Part of my inconsistency when I was younger was trying to figure out what was going on with my body, before I knew I had Hashimoto’s thyroiditis. But even after I got that worked out, I was an occasional competitor. I ran hard when I felt like it.

When I wanted to perform well or had a goal, I viewed the race as a job. I’d go into it with the attitude of, “I have a job to do.” That’s what I would focus on. It usually worked.

Looking back, I realize that I had potential that I never lived up to- when I was running my fastest, I would have been potentially able to compete at a much higher level, but it was not something I worried about at the time- I had other things on my mind, I was in graduate school, starting a career, and it wasn’t an obsession. I think it would have been interesting to see, for example, how many miles I could have run in 24 hours around age 30, when I was at my fastest. But that train has left the station.

Running appeals to me because it helps me get outside, escape, see beautiful places, enjoy solitude, and be either inside or outside of my own head, depending on what I need at the moment. There was a thrill and personal reward in running PRs and even winning races, but it wasn’t what I truly sought from running.

I so didn’t care, that there were many times when I was close to winning a race, but I never bothered to look at the stats or find out how close my competitors were. With a little extra effort I could have improved my standing, sometimes enough to be in first place, but it didn’t cross my mind. I was having too much fun in the moment. At a couple of times, I have driven some of my more competitive friends and crew members crazy from that.

I have often avoided people who like to talk shop- runners who love to obsess about statistics and who are the fastest runners, and who set records, and so on. I just don’t care to fill my mind with that. One of my longtime, best running friends does that all the time and I love her but I just can’t focus on those conversations.

I really don’t care what the fastest runners are doing- what they wear, how they train, what they eat, and over the years, I’ve observed that more often than not, they disappear from the scene as fast as they show up. Intense training leads to quick burnout, injuries, or a fast return to whatever dysfunctional compulsion got them into running in the first place.

The competitive, winner-take-all, first place is everything, traditional (and male, I might say) sporting world view misses out on so much. The depth of experiences and stories of individuals are lost. So much history escapes ever being known. The idolatry disappears everyone else into the mist. That’s why women’s experiences and accomplishments in sport were lost for so many years, and still are shortchanged- because of that worship of the biggest, fastest, richest, winningest, egotisticalest…

As far as my own future in competition, I realize that my days of setting PRs and winning races are largely over. That’s fine. The thing I am struggling with is how to move forward with running ultras when I can no longer put the time and energy into running that I used to. There are too many other things in life that are enjoyable and I’m not willing to make training feel like a full-time job anymore, even for short periods of time.

I don’t have a bucket list of races I want to do. I have done all the ones I wanted to, with one exception- I still want to do a 6 day race, preferably at Across the Years, among friends. I want to do it without destroying my feet, so that I can enjoy the time out there. I know my feet will hurt, but I need to make sure the skin is intact enough for 6 days that I can stay upright on them.

That is the problem I currently need to solve- I need to figure out how to make this work, to get ready for a 6-day without suffering through it, but not spending all my time training. I don’t really need to perform at any level. I can do whatever I want. I can run one mile a day if I want. I just need to fully come to terms with that and find what satisfies me and then I’ll do it. I can tell you right now I ‘m not going to be satisfied with one mile a day. I’m thinking more like 50 or so a day. Not sure if that’s even realistic at this point, but if running 270 miles in 5 days in Death Valley in July was possible, I think 300 miles on the flats might be.

What I’ve learned in the past decade

Over the past 10 years I feel like I have gained a deeper appreciation of my ultra experiences and what they've taught me. When I talk to runners younger than me in races, I hear them struggling with the same thoughts and questions that I have answered for myself over the years. They will find their answers, too. It’s a never-ending cycle of discovery and learning.

Ultrarunning as a sport has changed dramatically since 30 years ago. It’s good that it’s become a more well-known, accepted and recognized sport. More laypeople understand what the term “ultra” means if you use it in casual conversation, we don’t end up having to explain the whole “a marathon is 26 miles and an ultra is anything longer” followed by the shock and awe of the idea landing, quite as often as we used to.

Now there are so many people in the sport, and so many ultras! Still, certain ones remain extremely popular and “lottery” entries have replaced just sending in your application and entry fee. Many of the lotteries are highly secretive and are not true lotteries, allowing a large number of preferred entrants- for various reasons- into the race. Some of the ultra entry fees have gotten expensive, too.

I no longer enjoy the big races. The long-established ultra races seem to have deteriorated into circuses. There is a lot of money, sponsorship, and publicity and other intangibles that go along with these events. These days it feels like you’re at a major urban marathon with a huge race expo and you walk away with a bag full of little plastic trinkets with the race logo emblazoned on them, and all the sponsors.

I see people expecting to be served and given all the comforts, expecting to receive some material return for just existing or being there, the commercialization and materialism of many races and events. Remember Wayne’s World in the 80s, how they mocked corporate sponsors? That look- plastered with logos- has become the norm.

One of the nice things about ultras, even at the big ones, is the social scene around each race, a basic family atmosphere establishes itself and the runners come to rely on each others’ presence to maintain that. Newcomers are welcome, and after a couple of times they work into the fabric of the social network of the race.

When you have conversations with the runners and get to know them, and follow up year after year, it’s so fun. They become part of a family- your Across the Years family, Badwater family, Colorado family, whatever experience it is that you share. Social media has allowed us to stay in touch better when we are not at the events.

I love the personalities- gregarious and friendly, grumpy and curmudgeonly, the stories they share, and the depth of consideration and thought. Some of the best conversations occur on the ultra courses. It’s the shared humanity- you realize that there are other people who think deeply about things. Sometimes you wonder about people in the world- if they are as shallow as they seem. But I’ve hardly ever thought that about ultrarunners.

The physical, mental, planning and anticipatory challenges, the execution of your running plan and experience, and even afterward, make ultrarunning one of those things where you are constantly learning from experience, making mistakes and sometimes repeating them (the lessons will be repeated until they are learned) and mastering certain aspects of running. Old people keep going back to ultras because we forget how much it hurt last time!!! Actually, I think it hurts less in a lot of instances, the older and wiser you get.

Older runners at these races, who continue to challenge themselves, are the most inspirational of all. I don’t care how fast anybody is or what records they set, the most inspirational person at a race is the oldest one.

Some losses, some gains

When I say ultras are a microcosm of the world, the world outdoors is not the same as it was decades ago, when I started backpacking in high school or even in my early years of running trails and ultras. There are a lot more people using the outdoors and a lot more creative recreation opportunities, different types of toys, and a lot of people with a lot of disposable income to buy expensive, sometimes sophisticated, and destructive toys.

It seems that an environmental ethic of some sort has been lost among the newer converts to outdoor recreation- being quiet, having a minimum footprint, leaving the place the way you found it, being self-sufficient, all of those things seem to have slipped away in our rush to technology and comfort.

But we know more about the science of exercise, which is great. It allows us to perform, prepare, and recover better than in the past. A lot of old wisdom still gets passed down from older to newer runners, some of that is priceless.

I find that we’ve lost a reverence for the natural world- we are not protecting it, we are exploiting it more than ever. I am sad about that. It’s hard to go anywhere and not see people and their influence. I have to admit I curse under my breath some days when I’m on a run in my neighborhood on a trail around a lake, and there are other people there. I need some solitude, and I know it’s ridiculous to expect that in midtown, but it bugs me anyway.

The challenge is less, I think, when we do provide so many perks- and people have access to more sophisticated gear, clothing, food and drink, and technology. It all makes it more fun in some ways and enjoyable- I love having my phone that takes great pictures. I love my iPod and the tunes I can listen to. I love having warm clothing that wicks moisture away. I love having running bras that don’t cause me to chafe and bounce. I love that GPS can tell me how many miles, how much vertical, my pace each mile, and more. I don’t always use it, but it’s a nice thing to have when you want it.

I still believe in real food and drink though- some of those supplements, bars, and energy drinks and shit- I don’t understand why people think those are any better for them than real food. Maybe there is some nutritional benefit to some of them, but mostly I think they are a big waste of money. But suckers will buy them because some flash in the pan with a scraggly beard is hawking them.

I really hate those scraggly beards, by the way. They gross me out so bad. I can't wait 'til they are no longer popular. I just think about all the sweat and drool and boogers and leftover food scraps and who knows what else that settles in those birds’ nests.

What’s important now

These days I find myself focusing more on my work, my dogs, my home, my family. Having left the illusory stability of a regular job that was literally killing me, I’ve been trying to find my way back to some sort of balance and a source of income. I work a lot more hours for less money than I did in the hospital but it is much easier on my physical and mental health.

One of the things I’m learning now is that I cannot rely on the healing and recovery abilities of my body the way I used to. That doesn’t mean I can’t run far and long, but it means I have to be smarter about how I train and prepare myself, and what I do afterward.

I have learned that I can get by on my base for quite some time. I don’t have to train nearly as hard or frequently or long as I used to. Now I have a group of women I run with- most of them are not ultrarunners, or maybe have run an ultra or two but that isn’t how they define themselves as runners.

I have learned to give my body and mind a break and to have confidence in my ability to cover the distances instead of having to constantly go out and run far in my training runs. I knew that a long time ago, but now that I’m older, it’s even more important.

I don’t have as many days of running where I feel fresh and able to dig into my reserves. I enjoy it when I feel good, but I don’t get disappointed when I’m not feeling it. The exception was recently when I went on statins for my cholesterol for a year and that screwed up my muscles and nearly destroyed my enjoyment of running. I stopped the statins and it took about 3 months to start feeling decent again.

Don’t take that as medical advice- it isn’t. If you need to be on statins to save your life, take your doctor’s advice. But everything- even medical advice- should be carefully considered and a fully informed, conscious decision made. When in doubt, second, even third opinions from reputable, knowledgeable, licensed, experienced, scientifically-informed sources, should be sought.

Growth through learning and insights from ultrarunners

You can learn something from everyone, I am convinced that there is something to be learned from nearly every person you encounter and nearly every experience. My life would be poorer if I had not met many of the people I have through ultrarunning, good and bad.

I feel I have grown to be more accepting of my own limitations, but also to not stop pushing the envelope to discover what is possible. Not pre-setting any limits on myself, instead, discovering my limits along the way. And of course, there are some limitations that can be overcome through using one’s brain and creative powers to be smarter about it.

Most of my creative endeavors, and anything I’ve accomplished as an adult, has had a component attributable to running. For example, studying for exams in graduate school and nursing school, I could make notes to carry in my pack while running and quiz myself on whatever it was that I needed to learn, then check my answers with the notes. Writing or any creative writing project could be imagined or developed or refined through running. Painting ideas came almost entirely from landscapes I ran through.

Any problem in life that needed to be solved became more doable while running, even if I didn’t focus on it consciously. Something about running loosened the screws- that limit the imagination. It allows the round peg to float freely, unencumbered by the corners of the square hole.

I think above all, ultrarunning has allowed me to be in an ongoing state of healing from the small and large insults and injuries of life. These are things that we all experience along the way and we have to figure out how to move forward and weather them when we feel beaten down, temporarily defeated, or lose hope. Psychological and physical injuries are both painful, but the psychological ones can often be longer lasting and more damaging.

Running allows a place to be real. It allows you to separate yourself from the outside world and deal with yourself. You don’t have to, some people are happily obstinate even though they run a lot of miles. But running allows for that safe space to hear yourself think, feel, experience, and reflect. It offers a safe place for healing from the everyday insults and injuries we experience by being human.

The Eyerolls of Life
I am not an angry girl, but it seems I’ve got everyone fooled, everytime I say something they find hard to hear, they chalk it up to my anger and never to their own fear…” Ani deFranco

All runners get asked, “What do you do?” “Don’t you get bored?” “What do you think about while you’re running?”

Here are some things I think about while running, problems I’ve solved for myself, or issues that are in a state of ongoing resolution: a better name for this section might be: Shit I think about while running.

Healthcare and Nursing
I’ve talked a lot about healthcare on this blog, and nursing within a healthcare system that hates nurses, disrespects and undervalues them, and is slowly sucking the life and desire out of them to stay in the profession. When you go into nursing, you aren’t thinking about the dangers to yourself. You’re thinking about helping other people and are willing to sacrifice some of your own comfort in order to do that, for a reasonable amount of compensation. But quickly, you realize that it goes beyond sacrificing comfort. You’re sacrificing reason.

Healthcare is so awful to the people who work in it. It doesn’t allow them to be human. It requires crazy amounts of physically brutal and pathogen-exposed work on insane schedules, divides them into categories by status and overcompensating a few while undercompensating most, it doesn’t allow for natural rest periods or self-care, or worst of all, the ability to maintain or restore mental health when its workers are exposed constantly to the most stressful and vulnerable situations in life- other people’s life or death decisions and consequences or just plain bad luck.

Abuse is rampant at different levels of the industry and across different layers or status levels, as well as peer-to-peer, people are discouraged from caring for their own health when the consequences of not doing that impact the patients they are supposed to be helping. And those who run the industry talk out of both sides of their mouth, saying one thing to the consumer public and another to those who are working for them. In the long run, it amounts to the same thing: those in charge saying fuck you, I don't care, I want you to kill yourself for my benefit. All they want is a bonus. And it is enabled, sustained, and reinforced at every single level.

Among nurses are some of the kindest, most creative, smartest, caring, unselfish, and deeply committed people you’ll ever meet. And truly, more than a few nurses I’ve met are the meanest, nastiest creatures to ever walk the earth who hate themselves and want to make everyone else equally miserable. It comes down to being what they are-people, and nursing tends to attract certain personalities.

People
People remember how you made them feel, how they felt around you. It’s not my job to heal other people's emotional wounds and social awkwardness, but I don’t have to be a reminder of why they struggle with the world. I don’t have to contribute to their struggle, either. I remember how awful it felt to be around certain people who seemed hell-bent on making your life miserable.

Most of the people I’ve met through running have been extraordinary, truly nice, inspirational people. And then there have been very few assholes, narcissists, mean girls, and people who are just so socially awkward that they simply trip over themselves and get in their own way of being able to fully participate in the joys of this sport. That’s just how life is.

People skills are underrated. Some of the bosses I had in nursing, OMG who thought it was a good idea to put them in charge of anything, I’m not even sure they’d be competent to wipe their own buttholes, and yes, really, I mean that literally and sincerely.

While running is a solitary experience in many ways, if you’re involved in the running community at all, or do group runs, join a club, or enter races or organized events, people are part of it. Sometimes I like people, sometimes I just want to stay completely the hell away from them. Ultrarunning allows for a nice balance.

Politics


I don’t even have to get into it here, you know where I stand. I am completely opposed to our current President and everyone associated with him and his criminal enterprise. I just don’t understand how people fell for this con man- what did they think they were getting?

If the birther hoax, pussy grabbing, Russia- if you’re listening, and his history of bankruptcies and affairs and charges of racism against his real estate business were not enough to raise a red flag, perhaps half the population of the country ought to have their eyes and hearing examined at the very least.

Regardless, I am happy about the new Congress and I am thrilled to see some of the new members of Congress like AOC diving in to call out the corruption and good ole rich white boy environment of our government that has existed for so long and has served to siphon all the wealth and resources away from the public, leaving us much worse off as a country. I truly look forward to restoring anti-trust laws, enforcing the RICO Act, and restoring a greater degree of wealth equity.

What this world needs is more B.I.T.C.H. power! Brazen Institutional Terrorists and Corporate Hellraisers. It’s time to disrupt and upend the top-down, winner take-all approach of power going to those with privilege and status and only valuing those with the most, fastest, biggest, whatever.

One of the complaints I hear about from my peers is about older women disappearing: you never hear about older women, once you pass reproductive age, you are no longer considered useful, because women are there for their looks and as sex toys, after a certain age, the only role for them is grandmother. Bullshit. I refuse to buy into that. I will be seen, and I will be heard! What I say to that is, I am not here for your visual gratification, I am not an ornament. And I'm not dead yet.

One of the things about nurses that pisses me off more than anything is their unwillingness to get off their asses and do something about their situation. For example, look no further than the freaking Republican party these days. They are going to silence themselves out of existence by enabling that orange freak. The longer you align yourself with something truly harmful, the more you become one with it. By being silent, nurses are part of the healthcare problem.

You just have to be unwilling to take it anymore. Lose your fear of saying no and stop the bullshit in its tracks, like Nancy Pelosi did with Trump. NO, you are not getting funding for your stupid wall.

I feel so much better about nursing since I got out of those oppressive conditions and got involved in advocacy and speaking out. Now my nursing peers are strong, determined, forceful, outspoken people.

Nurses need to strike, to protest, to sit down in front of the CEO’s office door, better yet, out on the sidewalk outside where they work so the entire public can see what's happening- to organize, advocate, litigate, and raise hell. Just STOP accepting the crappy work conditions. Stop it now. Say, "No, we nurses are not going to settle for heavier workloads, less safety, and more risk!"

No, we aging women will not allow you to make us invisible! No, we will not capitulate to sexism and an attitude of superiority among men! No, I am not going to allow you to catcall me while I’m running by! I am going to do something about it. Watch me. And then I do it.

Releasing what is no longer serving you is important. Healthcare has been driven too long by a paternalistic philosophy of men (doctors) know best, women (nurses) are just handmaidens and enablers. It’s not helping. It’s not useful anymore. It needs to be released. While there have been small improvements in the gender balance, it's not enough.

This bullshit hasn’t served us for a long time, if ever. We have lost the talent and ability and drive and efforts of a major and growing portion of our population by suppressing and oppressing them. And that goes far beyond women: non-white, non-straight, non-Christian...basically, nearly everybody who isn't Mike Pence. (I have a deep-seated hunch that he has a deep-seated secret though.)

Yes, this is what I think about on the run. In between not thinking, looking at scenery, listening to music, singing, dancing, and enjoying.

Moving forward- literally

I have a six day race in the back of my mind for the end of 2020 because it will take me that long to prepare my feet again. Why 6 days? Why not 10 or 30 or 1000 days?

First, beyond 6 days, I don’t have the desire or drive- I just don't want to run any longer right now. Also, I don't have the financial resources (which includes time, because I have to work) to do that. I might have all those things in the future, but I might not ever. And I don’t feel the need to do more. Right now, I enjoy the day after day just waking up and running when I feel like it. I don't have to have lofty, overachieving goals. Ha.

But a 6 day event like ATY that is organized and compact and challenging and comforting enough, that sounds like fun. Plus I know so many people there, and they are people I would choose to be around for days and nights on end.

My goal is simply to be able to spend 6 days moving forward on my feet, for about 50 miles a day, without having any major foot or other physical or biomechanical issues that keep me off my feet for a substantial amount of that time.

I am letting go of that competitive drive and allowing myself to just do, be, enjoy. I have nothing to prove. I’m not doing this to be a badass, simply to reach a state of fulfillment or satisfaction.

Even sitting down to write anymore is not what I often want to do. I spent a year of my life writing a book. Since then, it's been hard for me to write for pleasure, though I feel I'm starting to get my enjoyment back. That’s why I’ve struggled with the blog for a couple of years.

How I want to die

I am glad I am 55, not 25, and don’t have a super long, long time left to be on this planet. I figure if all goes well, barring some freak accident or aggressive illness, I might have another 25-30 years left. I really don’t want to be here much beyond 80 from what I see around me. I won't be afraid to take matters into my own hands if the laws don't change around euthanasia either.

I really don’t want to be here once my body and/or mind are no longer able to maintain my independence. And I sure as hell don’t want to be taken care of by nurses within a healthcare system that is so ugly to the people who work in it.

I don’t want anyone wiping my ass or feeding me. Just toss me outside so I can die of hypothermia under some ponderosa pine trees with needles whooshing in the wind. Or let me shrivel up like a prune from exposure in the heat of Devil’s Cornfield with F-16 fighter jets divebombing over me.

And leave me there. I like turkey vultures, they're my second favorite bird. Crows are my favorite, by the way.

To Conclude...my philosophy until it evolves further

I wonder sometimes if I had been born in a different time if I would be different. Probably not too much, but it doesn’t matter. I’ve managed to do a lot of things in my life on persistence. I don’t watch TV and I don’t have kids.  I don't put on makeup or do my hair, or worry about what to wear 99.99999 percent of the time. That’s all pretty freeing in itself.  I like to feel that if I die tomorrow it’s okay, I am satisfied with what I did while I was here.

But as long as I stick around, I’ll keep disrupting, keep innovating, keep defying, keep raising hell. It’s the only way I know how to be.


For much of my early life, I felt that I was a square peg and all the holes are round. But it’s really just an illusion that the peg is square and the holes are round... dim lighting made it look like there were corners. When you’re round, you have the ability to flex, there are no mandatory corners. There’s room for everything. If the world could just learn that lesson, we would not be as terminally fucked up as we are. We humans really are our own worst enemies. We need to become better friends with each other, especially ourselves.

We need to stop self-limiting our natural intelligence (the cognitive and creative gifts we were all born with- which are unlimited in their potential, vary from person to person, and cannot be measured with any test or tool) and underestimating whatever physical abilities we have, and where they could take us.

In other words, stop worrying so damn much about what other people think.

You can move mountains, or they can move you
- Sherpa John Lacroix


*(remember the tiny asterisk in the first sentence way way back at the beginning?) The actual physical act of running- I should qualify this entire post- sometimes I am not doing what an observer might call running. I might be walking with varying amounts of effort. Usually I walk pretty hard, but not quite as hard as a powerwalk. Moving forward on my feet, whether it’s pure running, broken up with bouts of walking, or just going out for a walk, is running, as far as I’m concerned.

Thursday, August 30, 2018

Clear Skies!

I needed to get some miles in this week, but I didn't have a lot of time to plan something. Decided I wanted to get a long run in, but it was easier to split it up into two days. I settled on 50 miles broken up into 30 and 20. That way I didn't have to rest so much or plan- both days could be low key, just a little longer than my normal run.

I woke up super early for some reason on Wednesday and got out the door by 4:45 am to start my 30 miles. I ran for about three hours and watched the sun rise, then came back to the house, got Velcro and Gypsy, and took them for about an hour run, then brought them home so I could finish my miles. All went well, I felt good, and kept a decent pace all morning.

I ran into two people I know at the lake, one is a runner I see often over there since he lives by the lake, and the other was a surgeon who is now retired, but I used to work with him when I worked in ICU. We stopped and talked briefly looking at the lake. He said something about next time there being snow. I'm not quite ready for that, but it will happen soon enough. It sort of feels like an early fall, it's been cool in the mornings and the trees seem to be changing colors earlier than usual. The sky was so clear today, I could see the Indian Peaks south of Longs Peak, which I haven't been able to see all summer, with all the smoke from the fires everywhere.

I got done with the run feeling like it was no different than my usual 10 to 12 miles, got some things done in the afternoon, pulled 40 pounds of grapes from our vines off the stems, ate dinner and went to bed.

This morning I woke up later and took the girls for the first 6 miles of my 20. As we rounded the lake I saw two people walking, a man and a woman, and the man looked somewhat familiar. I saw him look in my direction too, but we ran by and he didn't say anything. I wracked my brain to try to figure out who he was and how I knew him, then it hit me like a lightning bolt- he worked at the hospital too. I remember talking with him as he was often working part of his day in the ICU.

As we turned around to run back toward the lake, they had turned around and were heading toward us. This time we looked at each other and stopped- and yes, it was him. We hugged each other and he introduced me to his friend, who also worked at the hospital. Now they are both retired. He introduced me as "used to be an oncology nurse" and I told him that I still am, briefly told him what I'd been doing since I left the hospital. He's been gone from there about as long as I have been. He said he was glad to see me and also said he's always happy to see people who thrive after leaving that place, and his friend nodded. He said he was really glad to leave such a toxic work environment.

It's funny because now I clearly remember the day I was so pissed off at my boss, who had terrible management skills, and I was ready to tell her to shove it up her ass. I left the hospital crying that day and that night I wrote my letter of resignation. As I was leaving work, I ran into this same person I saw at the lake today, and he gave me a hug then and wished me well. He knew at the time that there was so much bullshit going on in the hospital. I'm glad he got out, too.

I brought the girls back to the house and went out again, first stopping at the donut shop because I was hungry and it was conveniently located. I didn't plan for much running food, so I ate what was easy to find. After that I went south of where I usually run, and made a stop about three miles from home for an ice cream sandwich and cold water, as it was getting hot and my water bottle were getting warm. I felt fine, like I did any old run. I can definitely feel my fitness and endurance have improved since the beginning of the year.

After my treat, I finished my 20 miles, and spent the afternoon making tomato bisque soup from our tomatoes and putting the de-stemmed grapes into plastic bags to freeze so I can make jam in a few weeks when I have time. I'll be doing a little traveling for a while, and then There Goes the Sun 12 hour run is on the day of the Fall Equinox. After that I'll have 3 more months to get ready for Across the Years!

Saturday, December 16, 2017

On Power, Nursing, and Sunsets: A Long Overdue Rant!!



"My job is ________ (insert true purpose), not to be a cog in the wheel!"

Okay, so as a nurse, I would fill in the blank with patient advocacy.

Why THIS rant, and why NOW?

It's been quite the week, or several...

Recent events have reminded me of why I left traditional healthcare setting to become a nurse entrepreneur and do the work I am passionate about.

One is the Harvey Weinstein scandal and all of the related accusations that have followed.

Another is the latest revelation of an eye surgeon physically assaulting a nurse in the operating room, in Cedars-Sinai Medical Center in West Hollywood.

Still another is hearing someone's account of going through the wringer just to get a diagnosis and chance at treatment of her metastatic cancer.

And another is being almost done with my book, and after toning down my passion and enthusiasm so as not to be perceived as angry, I was told I need to put some teeth back in the book by my most honest critic, which I gladly did. (Why can't women be angry? We certainly deserve to be. Those are valid feelings. We don't have to shut up because it makes somebody uncomfortable.)

And finally, today I received yet another e-mail from a nursing organization offering a continuing education module, sponsored by a drug company, about pancreatic cancer.

What do all these things have in common?

They all have to do with a power gradient and how the powerful can push, shove, elbow, sneak, and bludgeon their way to maintaining the status quo.

Hearing about the surgeon assaulting the nurse, according to the allegations, the surgeon was barely slapped on the wrist, while the nurse was bullied by the powers that be, reducing her hours, moving her to a different floor, and not being taken seriously. It doesn't matter that it was not sexual assault. Harvey Weinstein used his power to manipulate, threaten, and ruin the careers of women who did not acquiesce to his demands. Nurses are seen as an expense in the healthcare system, expected to stay quiet, cooperative, and inexpensive. Surgeons, on the other hand, are revered as money makers. In a healthcare system that values profit over patient outcomes, this is what you get.

And if a patient is emotionally needy, scared, and anxious, maybe even a bit dramatic, the doctors avoid her, push her out of the way, write notes to each other about her, and try to push her off onto someone else. Instead of seeing her for where she is and what she's facing, and considering what might be driving her behavior, the doctors are focusing on the behavior and seeing the patient as the problem.

To top it off, I saw this email about continuing nursing education on pancreatic cancer. I like to keep up with the latest in cancer treatment, and I opened the email to read the information inside. I skimmed over it, finding very little useful information, and when I reached the bottom, there it was, sponsored by Celgene.

Just another one of those mind-numbing continuing education opportunities that continue to focus more on the characteristics of the disease and treatments themselves, rather than on helping the patient heal and regain quality of living. Once again, there was plenty of material about the common symptoms and disease characteristics, but at the end , a few crumbs were thrown in the direction of mentioning quality of life, without any substance or real attempt to help nurses develop new tools or skills to make a difference for patients where they exist in their own lives.

And this is the problem in nursing- because nurses are an expense, expendable, and an afterthought, we are thrown a few crumbs by the big powerful drug companies, who make it easy for us to digest what they want us to parrot to the patients, to keep them coming back for more. Meanwhile, the qualities of creativity and intellectual curiosity are removed from nurse education. Who wants to be creative or investigate new ideas when they've been on their feet for 13 hours?

Being a cog in the big wheel of profit-driven healthcare is what is expected of nurses. Even if we get assaulted on the job. And it's happening more frequently. We're speaking out.

It's very frustrating to the powerful to not get their way.

Before I forget, watching Roy Moore's horse's ass ride off into the sunset- his defeat was delightful. It was a wonderful occasion to appreciate a Hanukkah present for this nonobservant JEW. You schmuck. And your evil wife.

I love sunsets, don't you?

Friday, June 17, 2016

Seeing Things

First, some running news I am so excited to share. Yesterday I got 15 miles on my feet, I walked 5 miles after my 10 mile run. Then today I went out in the heat again and did 20 miles, and ran most of it, at least 16 of the miles. I was out for 4 hours and ran over 3 hours of it. I felt good, much better than I ever thought I would. Not a struggle at all.

That is encouraging because I want to be able to go for 12 hours in the September Fatass and it sure would be nice to at least do what I did last time, which was 50 miles. It would be a real boost for me if I felt like I could get some ultra miles in.

Yesterday I left off in a partial rant about healthcare, and I wanted to say more things.

Suicide
The other night I was in the class I teach twice a month for cancer survivors. I bring in guest speakers frequently who discuss different topics of interest. Mostly about therapeutic exercise and movement, but occasionally I'll find someone who has a different area of expertise, such as biofeedback practitioners, psychotherapists, and so on. This week we had a guest speaker on healthy communication. She did talk about that, but her talk went far beyond and touched a very deep chord with me.

She was talking about mental health, she lost her son to suicide more than 10 years ago. He'd struggled with his mental health most of his life, and was a creative, sensitive person, and it sounded like he struggled with fitting in. He finally got to the point where it was too painful for him to cope with life, and probably wasn't getting the level of treatment he needed.

Whatever the events that led to his death, she was talking about the note he left and the poems he wrote prior to his death. She said even when he was a young child, he drew pictures, and he always drew them from the inside out. She knew he saw the world differently than most people.

The whole time she was talking about him, I was having a hard time turning off the faucet. Tears were streaming down my face and I could not stop them. The next day when I wrote to her to thank her, I had to tell her how much her story affected me, and why.

Square Pegs
This world does not make it easy on people who are the square pegs, who see things differently, who exist outside the box. There are only certain molds that are acceptable to fit into, and if you don't fit into one of them, it's a difficult existence. Add to that a tendency toward depression, anxiety, or other mental health struggles, and our lack of mental health care, and you have a recipe for a lot of bad things to happen.

The problem with the square pegs is that since they don't fit in, they are not accepted, and therefore, not "seen". People only see what they are looking for, and what they want to see. Similar to hearing...

At times it can feel like you're screaming at the top of your lungs, and no one can hear you. Like you're trapped, maybe with locked-in syndrome.

The reason it affected me so much to listen to the story of her son was because I have struggled myself. Some of the things her son said in his poems were things I have thought, for myself, almost in the exact same words. Like when he said he looked forward to the relief that death would bring. I've been there. I've thought that. Yes, I have. More than once, more than a few times.

No, it's not something I obsess about or ruminate on, but I know that place. I am fortunate, I've managed to find plenty of ways to head off depression from overtaking me and pulling me down. But I've had enough difficulty in fitting in, being the square peg, in so many ways and situations in my life, that I can relate.

I have questioned why I am on this planet more times than I can tell you. Somehow, between Dennis, running, my dogs, and the beautiful outdoors of Colorado where I live, a little pharmaceutical help and occasional therapy over the years like cognitive behavioral therapy and EMDR, I've been able to find the will to keep going, to keep from jumping off a bridge or drowning in a bathtub.

Talking About Mental Health is Healthy
I know I'm not alone. I know there are more people who have had these sorts of thoughts cross their minds than will ever admit it, out of fear of the stigma of being labeled as mentally ill, or somehow not up to par. I think what we mislabel as mental illness is really a combination of a normal human reaction to the insanity of our environment and the way we are expected to live our lives, with the incredible burden of stress, coupled with each individual's genetic and functional makeup of their brain.

We need to quit making this world so hard to live in. That's a tall order- economically, politically, educationally, being humane and supportive and accepting each others' human-ness, instead of forcing everyone to be wireless production robots who are constantly connected, with no OFF switch.

Be Real
When people see that other people struggle, it validates them. It makes them stronger. They know they are not alone and they don't feel the need to hide those feelings, or at least, they can admit it to themselves more easily. I might have a tendency toward depression, but I am not mentally ill because of it, I am not abnormal because of it, I am not insane or incompetent because of it.

I really truly believe that the way I see the world is okay. It's not easy to live in it as a result, but I think I'm pretty damn sane! I know what I value, I know what's important to me, and I won't compromise on those things because someone insists I fit into their round hole and stay there.

You know what happens when they put you in the round hole? They expect you to stay there. And there you are, in the confines of the walls of the hole and you can't grow or breathe or do anything different. Stuck. Stagnant. Until they let you out. But you know what? They're not going to let you out, because it serves their purpose well. They want you to stay right there so they can control everything, without tripping over you.

That's the problem with us square pegs- we get in the way. Instead of everything being smooth and easy, people trip over us, because they don't see us.

Someone Else's Gift Does Not Diminish You
I have a lot of talents, "gifted" is a label I've been slapped with. I can write, I can paint, I'm a decent athlete, I'm smart about most things, I think creatively and deeply about things. The one thing I've never been talented at is making money or sticking to a "job" for very long, because I start to feel like I'm trapped. I get claustrophobic when I get roped into a big organization that demands Stepford-ness. I cannot make myself stay in a situation where I feel like my thoughts, ideas, freedom, and existence are being usurped and oppressed.

For many people, they are able to forget the bullshit they are wading in, and not worry about it, move forward, go through the motions, put up and shut up, and collect a paycheck, on and on, year after year. I cannot do that. I have tried, but only could deal with it for a brief time. Eventually it's like I need to crawl out of my skin. It makes me sick, physically, and mentally. I've suffered my worst depression at those times.

My mom, with whom I don't have a relationship, told me I used to drive her crazy, that's why she put me in preschool at 2 1/2 and kindergarten at age 4. According to her, she made the school give me an IQ test to prove to them that I really was some kind of gifted kid so they would let me in. I must have passed. The problem is when you stick those square pegs in with the round ones. They stick out, and are noticed as different, and not in a good way.

Why not nurture a gift and appreciate it? Kids know when someone is different. It's only when they learn from adults that it's okay to treat them differently. In adults, it's even worse. Adults backstab, gossip, undermine, and act out on envy of the gifted person's talents. Bullying, hostility, mean girls, ice queens, you know the rest...especially if you're a nurse, I might add...

When I wrote to thank the woman who was the guest speaker talking about her son, I told her why her story affected me so much. And she said in her reply to me, keep being not normal. Many normal people are driving the rest of us crazy. We need you for balance.

I know that. I've had to hang on to that, knowing that I might just be one of the few sane ones in an insane world. Sometimes that's all I have to hang onto, if I'm going to believe in myself and keep going forward.

So what does this all have to do with healthcare?
Well...for one thing, the medical model that trains physicians and that the rest of the healthcare providers and staff have to live with, does not train physicians to see outside of their very narrow focus and scope. And the way healthcare works, the big healthcare organizations limit the amount of time physicians have to explore ideas outside the box.

The insurance companies have a lot of clout in determining what can be done, because they only cover things based on agreements between healthcare systems and their mutual bean counters. And what does this mean for the patient? They are limited in what services they can use and/or afford.

We can't just allow everyone to use every possible service and have it covered by insurance- that would be crazier than what we have now. And people without medical training don't know why certain things are necessary or not necessary.

But the problem is that there are a lot of services that would be beneficial for patients but physicians don't know about them, or don't acknowledge them. They don't SEE them, because they don't fit within the narrow model in which they were trained.

Physicians Are Human, Mortal,and No Different From Anyone Else
So when physicians (and not all physicians, mind you...some are much more worldly, humane, and empathetic than others) see their patients, in a cancer setting, for example, the physician tends to look at success as having saved a life, not whether that life is of good quality. Being alive becomes more important than living life well. So when the patient complains of lasting effects from cancer treatment, the physician might say, "Well, at least you're alive."

Which is a shitty thing to say to someone when they come to you complaining about something that obviously is affecting their quality of life, or they wouldn't have said anything about it in the first place. "Validate my pain" is the first request the patient is making. At least, acknowledge that this is real, doc, it's not in my head. Just because you don't know the answer doesn't mean answers don't exist. They might just be someplace you haven't looked. "Help me find the answers", is what the patient is saying.

The struggle I am having as I introduce my business idea, is when physicians don't know what to do with it. They see that it's exactly what they want their patients to have after treatment, but it's not being done by a physician. A nurse?

It makes total sense, but it's just hard for them to wrap their heads around the fact that someone other than a physician could actually provide a service that promotes health and quality of life, because quality of life isn't even in their field of vision- that's not what they learn in medical school- and nurses?

Well, aren't they the ones who take vitals and call us when the patient is deteriorating, or when they need an order for medication? The fact that nurses could provide a valuable service that might help a person in their everyday life, between doctor appointments...not even on the radar.

New ideas are hard for people to accept because they don't see them. They haven't even thought about it.

Being patient is not one of my virtues. Sometimes I have to remind myself that I am dealing with people who are slow to process things. Yes, physicians are people. They are no smarter than the rest of us, I can assure you. They just had the stomach to put up with a lot of abuse through medical school. And then they continue to suffer those abuses in their professional lives.

And that my thoughts and ideas might come from a different universe with which they have never been familiar, they've never traveled there. It can take a while, if at all.

They might never have been challenged to open their eyes, and see. They've been taking multiple choice exams for so long, sometimes I wonder if all they know how to do is fill in the little circles, like the round holes that square pegs don't fit into. All you do when you try to shove square pegs into round holes is strip the corners. But they'll never fit right, no matter what you do. It's like the algorithms they are expected to follow with certain situations in the hospital. Often, one size fits none.

Physicians, I am not trying to disparage you. But it sure is frustrating when you can't sit down human to human and have a conversation with anyone who doesn't have the same set of letters behind their name as you do. But you are, at least in part, responsible for it being this way. I feel for you, I know the abuse you suffer. You have a high suicide rate in your profession. You can change it, too. Step out of the box, if you dare. Collaborate with others. Find ways to make it work. Start seeing the square pegs, maybe they can lead you in a different, and better direction.

So whatever I am able to accomplish in my lifetime, I hope it is just making people see things that they might otherwise have missed. And the rest of my time, I'm gonna enjoy my dogs: the next generation of puppies coming soon, the mountains, running, writing, painting when I can finally get around to that again, and drinking margaritas or great Colorado beer with Dennis and my other friends.

Thursday, June 16, 2016

Back Up...Unloading!

Yeah, that's me. I have a lot to say. I've been hiding out, buried under piles of work. I needed to breathe, so I'm indulging myself in a little creative writing and unloading today.

It's been nearly a month since I've posted here! I don't like that, I try to be consistent, but I thank my readers and followers for sticking with me.
First, feast your eyes on South Park and the Arkansas River Valley near Buena Vista. Last weekend we went up to the shed, on our property overlooking Pikes Peak and South Park.

The reason for the long break is, as usual, work. I've been extra busy because I picked up a small project on the side in order to bring in a little income and that helped. Starting a business requires constant investment and re-investment, and when there isn't anything coming in at the beginning, it depletes your reserves quickly.

But that's okay because I am doing what is important to me.

So first, a few minor orders of business. I finally, after 8 1/2 years, bought the domain alenegonebad.com so now you can find me without having to type in the extra blogspot stuff. Takes you right back here. No change.

I haven't been running much. This morning I did run for an hour and a half. It finally got hot, in the 90s, and might hit 100 by the end of the week. I guess that's what it takes to motivate me to run?

I am planning on running/walking an event over Labor Day. My friend Marissa is putting on her 12 hour fatass "There Goes the Sun" on September 3, and I'm "training". That means I am getting out and walking with a little running mixed in. Shooting for being able to stay upright and moving forward for the entire 12 hours.

The weekend before last I went running/hiking Round Mountain with my friend Emma and we encountered two unhappy snakes, one bull snake, one rattlesnake. Got a good closeup of the rattler.


You know where this is going...Orlando, of course. And I am so disgusted, but something feels like this was a turning point. It's disgusting to see the party of homophobia suddenly saying all these platitudes (because you know they are only posturing in an election year)about the LGBTQ community. Just last month they wanted birth certificates to go to the bathroom, and so on.

The gun thing is finally shifting too. #NRASTFU is what I say. The refusal of the gun lobby to have a mature, intelligent conversation about reality, and their endless excuses as if the second amendment is some sort of divine ruling from the heavens. They freaking worship guns, and the second amendment is their god.There is no reason why any group should have so much power, that they can even prevent research into gun (safety) violence as a public health issue. That is insane. And we continue to have all these shootings and gun deaths day after day. Like little boys throwing a temper tantrum. There are some girls in there, too, but the leadership is mostly men. That's part of the problem with everything in this country, and it looks like it's about to change in a big way.

And I'm sure those misogynistic pasty old white dudes explaining righteously(M-POWDERs) will be just as obstructionistic toward Hillary Clinton as they were toward Barack Obama. Except they might lose their majority after all the nonsense and putting their clown lineup on display, to show the pathetic lack of substance and outright denial of the real issues facing the people of this country. A breath of fresh air, that would be, if the whole damn Republican party imploded. And let's clearcut and burn the Democratic party too. Start over. With real people, who look like the ones in the general population, not a bunch of POWDERS! We could finally make some forward progress.


Okay, back to earth. What's real. Good news first.

A Twinkle in the Eye...

After searching for several months, we found an Australian Shepherd breeder we like in Nebraska, just 5 hours from here, and we decided to splurge and put a deposit down on two puppies, to arrive either late this year or early next. They are not even a twinkle in the eye of some Aussie dude yet, but we are expecting.

We plan to get two girls again, at least one black tri, maybe one black and one red. We are looking forward to puppy-proofing the house and some of the work we will do this summer involves checking out garage sales for things like baby gates, agility equipment and toys for the girls. We'll have to puppy-proof parts of the house and the garden.

We miss Iris and Isabelle so much, every single day. We were going to take their ashes to the place we planned, but we weren't ready. We're not ready for pups yet, but we are moving closer. I miss having my buddies around!

Life & Death

Three of my running friends have been diagnosed with cancer in the past few months. It's been tough seeing them go through their separate situations. One of them, an ultra buddy of mine, is fortunate to have had an early diagnosis, and I hope the outcome will be as good as it can be. The other two have quite advanced cancer. One is young, the other is older but not old. Also, one of my neighbors, in his 80s, also received bad news about his own advanced cancer. He's been active, walked everyday and we had many occasions to walk together and talk. He always was a friend to Iris and Isabelle. He's a fascinating person, and he is the most spiritually healthy person I know.

I'm going to miss him and my other, older friend who is being treated to manage symptoms. She has prepared herself too, and I am proud of her for taking the steps to do what no one wants to do.

Death runs in the family. It does in mine, anyway, I don't know if your relatives are immortal. I certainly wouldn't have wanted some of mine to stick around forever. I definitely don't want to. We're all going to die. Let's confront it, accept it, and plan for it, before we find out the end is closer than we expected, so we can have a good death as the end to a good life.

I wish that more people would examine their own mortality and face it, because it makes things so much less chaotic, it's better for everyone around them to know that they've thought through it, decided what they want, and are okay with it. But we have a long way to go in this country. Our collective immaturity has deemed us the world's teenager. Impulsive, without a fully developed frontal lobe. Thinking only of ourselves and not of the person next to us, or how our own actions, or lack thereof, affect them.

Clinical Trials and Boob Smashing

Speaking of life and family and cancer, I just enrolled in a clinical trial, because of my extensive family history of cancer, especially leukemias. The trial was looking for people over 50, never diagnosed with cancer, with a strong family history of it. It involves genetic testing and looking for early cancer markers. I'll find out the results, too. I realize that I might find out something I'd rather not know about or have to deal with, but knowledge is power.

I'll be getting my blood drawn next week for that. I'm excited to be a lab rat. It's so hard to get subjects for clinical trials, and they are absolutely necessary for us to advance our state of knowledge about cancer and how to treat it. So if you have the opportunity, please participate in one. You never know who, down the road, might benefit or even have their life saved by your participation.

Since we're on the subject, I decided to also splurge on a 3D mammogram when I go in next month. Breast Tomosynthesis is the name of the screening. It gives a 3D picture, actually about 11 different images from different angles. Also I heard they don't smash your boob as hard, which is good news for me, because that hurts! It's a good way to get a better image especially in people with dense breast tissue, like me. I'm dense. I'll have a report on it here, of course.

I have some other topics to touch on. Mental health is another one. And I have more, much more to say about healthcare, as you know it's one of my favorite rant topics. But I'll get to that later. I'll be back, I've missed blogging and I am starting to miss running. I wish I had more than a few days a week where I felt motivated to take running steps rather than walking. But I still feel fine when I run most of the way in a 10 mile outing, like I did today.

Scroll down and enjoy the rest of the photos from last weekend. Most are from our property but many are from the Colorado Trail and areas nearby. So great to live here, and to hang out in the shadow of the Buffalo Peaks and looking out across lower South Park at Pikes Peak.

When I have those difficult days, I just need to remember I am surrounded by so much good. Working alone, feeling like it's a forever uphill climb, and feeling like the world wants to duct tape your mouth so your voice is muffled, and they pretend they don't understand you, but really, they do, but it's just too hard for them to gather the courage to climb out of the box.

I'll keep being myself, even if I'm a lone voice (which I know I'm not) and at a distinct disadvantage because of power and resources (which I will not allow to stop me) and I'm just going to keep getting louder.


Thanks for reading!